Some time ago the editors of this website asked me to respond to Ben Mattlins critical article on Spinraza, the new drug treatment on the neuro-musculair disease SMA. They weren’t aware that I too, just like Mattlin, am a 54 year old person living with SMA. Continue reading Of disability pride and fear
Category Archives: Spotlight
Is Austria moving towards being a society without solidarity?
In 10 days Austrians will elect a new parliament. Eva Fleischer, professor at the Management Centre Innsbruck,reflects on the election campaign and its meaning regarding solidarity in Austria. Continue reading Is Austria moving towards being a society without solidarity?
Relational care in forensic psychiatry
Petra Schaftenaar, who participates in Critical Ethics of Care, gives insight to her PhD research on relational care in forensic psychiatric care in the Netherlands. Continue reading Relational care in forensic psychiatry
Care and the immigrant crisis
A few days ago Norwegians elected their new parliament. In this article Per Nortvedt of the University of Oslo, reflects on why these elections should have led to a different immigration policy. Continue reading Care and the immigrant crisis
Nine misunderstandings regarding ‘completed life’
In 2017, a member of the Dutch House of Representatives – Ms Pia Dijkstra – published a legislative proposal under the right of initiative. The proposed act carries the name ‘Wet toetsing levenseindebegeleiding van ouderen op verzoek’ (‘Termination of Life on Request by the Elderly [Review Procedures] Act), and is popularly referred to as the ‘completed life act’. Continue reading Nine misunderstandings regarding ‘completed life’
Participation, Care and Support
The research group Participation, Care and Support is part of the Research Centre for Social Innovation of Utrecht University for Applied Sciences. This is a transdisciplinary research centre, doing practice based research focused on relevant social issues, connecting different fields like social work, care, law, employment, policy and organisation. In the centre, around 125 researchers are active Continue reading Participation, Care and Support